My baby has an unidentified syndrome.

Postnatal, Your questions

My name is Agathe, and I just gave birth to a baby who has a syndrome that can’t be identified yet. He’s my second child, and my husband and I were devastated by this. I wanted to find information about handicapped children to get support and some answers. I love my baby, but I am so sad because I don’t know what his future will be like. I am living one day at a time. My spouse doesn’t really express himself, and I think he wants to be strong for me. But I know he feels as bad as I do. I know it’s an issue we have to talk about because it affects many parents who never expected something like this to happen. Can you please write an article about the arrival of a baby with special needs and the impact it can have on a couple, a family? Thanks in advance, and if you would like me to talk about my experience, I would be happy to help other families. Agathe


Dear Agathe,

Thank you for your message.

You are right that we need to talk about this topic, even if it is difficult to read about when preparing for the arrival of a baby. Everyone wants a healthy, normal baby. It’s a major shock if the baby is not up to parental expectations. Reading about the topic doesn’t cause illnesses or syndromes for the baby, but it can lead to important reflections and discussions before the baby arrives. Agathe, what you are experiencing is a type of mourning. You are mourning the baby you expected to have, and it has an impact on the rest of your life as a couple and family.

Please read my article Having a Baby that is Different. Thank you for your message and your proactivity in wanting to help other parents who may share your experience.

Talk soon,

Marie

The Baby Expert 

Je t’invite à lire le billet que j’ai écrit sur le thème : Avoir un enfant différent

Discover our videos

Subscribe to a monthly or quarterly package now to access full videos.

Acupuncture and Pregnancy

Acupuncture and Pregnancy

Did you know that acupuncture is a safe alternative practice during pregnancy and for the baby? Along with Karèya Audet,
Good Lifestyle Habits and Pregnancy

Good Lifestyle Habits and Pregnancy

As a future mother, you want to do your best to promote the proper development of your baby. Here are
Physical Exam of a Baby

Physical Exam of a Baby

Parents may not know how a newborn will physically look after birth, and it may worry them. Marie does a
Breastfeeding : Engaging with my baby

Breastfeeding : Engaging with my baby

What happens during the first moments with your baby? How does the body prepare for breastfeeding? Marie talks with new