My baby has an unidentified syndrome.

Postnatal, Your questions

My name is Agathe, and I just gave birth to a baby who has a syndrome that can’t be identified yet. He’s my second child, and my husband and I were devastated by this. I wanted to find information about handicapped children to get support and some answers. I love my baby, but I am so sad because I don’t know what his future will be like. I am living one day at a time. My spouse doesn’t really express himself, and I think he wants to be strong for me. But I know he feels as bad as I do. I know it’s an issue we have to talk about because it affects many parents who never expected something like this to happen. Can you please write an article about the arrival of a baby with special needs and the impact it can have on a couple, a family? Thanks in advance, and if you would like me to talk about my experience, I would be happy to help other families. Agathe


Dear Agathe,

Thank you for your message.

You are right that we need to talk about this topic, even if it is difficult to read about when preparing for the arrival of a baby. Everyone wants a healthy, normal baby. It’s a major shock if the baby is not up to parental expectations. Reading about the topic doesn’t cause illnesses or syndromes for the baby, but it can lead to important reflections and discussions before the baby arrives. Agathe, what you are experiencing is a type of mourning. You are mourning the baby you expected to have, and it has an impact on the rest of your life as a couple and family.

Please read my article Having a Baby that is Different. Thank you for your message and your proactivity in wanting to help other parents who may share your experience.

Talk soon,

Marie

The Baby Expert 

Je t’invite à lire le billet que j’ai écrit sur le thème : Avoir un enfant différent

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My baby has an unidentified syndrome.

Par Marie Fortier Temps de lecture: 1 min
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